Panhematin Prevention Study 7 Patients Needed!

  • Friday, September 18, 2020

Dr. Anderson, esteemed Porphyria expert at The University of Texas Medical Branch - Galveston, is currently seeking seven more patients for a Panhematin Prevention Study.

Do you have a confirmed diagnosis of an acute porphyria?

Do you receive prophylactic heme treatment (weekly, bi-weekly, monthly)?

If so - contact Edrin today!

?Participation in this study will involve traveling to the study site for participation! Travel to the study site will be included (FREE). Call Edrin directly at 301.312.8741 or contact him via email at edrinw@porphyriafoundation.org 

WE NEED YOU! IF NOT YOU, THEN WHO?