Porphyria Awareness Week Events

  • Friday, March 12, 2021

Saturday, April 10 

  • WEAR PURPLE or YOUR PORPHYRIA AWARENESS SWAG!
  • SEND US YOUR PHOTOS! 

Sunday, April 11 

  • CEP/ADP member story highlights!  

Monday, April 12 

  • #LETSTALKPORPHYRIA
  • Zoom Session with Nicole Castellano! Send us an email to RSVP TODAY! 
  • PCT member story highlight! 

Tuesday, April 13 

  • Shadow Jumper Challenge EPP/XLP story highlight! 

Wednesday, April 14 

  • PORPHYRIA LIVE with Dr. Bruce Wang via FB. Will you be joining us?
  • AIP member story highlight! 

Thursday, April 15 

  • VP member story highlight 

Friday, April 16 

  • TAG YOUR MEMBERS OF CONGRESS ON SOCIAL MEDIA ENCOURAGING THEM TO JOIN THE RARE DISEASE CONGRESSIONAL CAUCUS!!
  • APF Click Campaign

Saturday, April 17 

  • WRAP PARTY!  Thank You for Spreading Awareness - Reach out to those who have been supportive to thank them!

 

Merchandise

Be sure to get your gear for Porphyria Awareness Week! Merchandise will be available very soon in the APF Store: https://porphyriafoundation.org/apf-store