The APF will have materials available for Porphyria Awareness Week 2020, April 18-25th. If you are interested in receiving awareness materials from the APF, please contact the office. Materials can be used to raise awareness, lobby local government officials, as well as for local fundraising. With "#Ask Me About Porphyria" as our tag line, we hope to engage conversation and awareness concerning porphyria in all of our communities.
To receive materials, please contact please contact Iany at the APF office with your name and mailing address at: firstname.lastname@example.org