Porphyria Awareness Week! April 18-25, 2020

  • Friday, February 7, 2020

Porphyria Awareness week is an opportunity for you to create awareness in your community!

The American Porphyria Foundation is here to support you with ideas, brochures, materials, social media files – and any any other support that you may need to raise awareness about Porphyria in your community to the general public or to physicians.

What are your plans this year for Porphyria Awareness Week? We want to know - Send your plans to Iany via email at iany@porphyriafoundation.org

Ideas from recent years include:

  • Campaigning with local media
  • Barrel Race
  • Local fundraising
  • Passing out educational material 
  • Painting hair/nails purple
  • Creating awareness merchandise
  • Table set up at local hospital
  • And so much more...