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You aren’t alone! Many of our members are isolated at home, possibly away from loved one and medical professionals. However, we can come together as partners in this time of need. During the COVID-19,the APF has created a simple way to feel less alone and to connect with others in our community through Porphyria Partners. No social media required, just a willingness to check in with another porphyria warrior each day.
If you are interested in being partnered with another person, please email general@porphyriafoundation.org or call 866-APF-3635 with your name and email address. We will connect you with another another member via email. We ask that you make contact with each other and check in with each other each day in the best way for each of you.
We look forward to hearing from you!
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