IS YOUR LEGISLATOR A MEMBER OF THE RARE DISEASE CONGRESSIONAL CAUCUS?
Influence your state legislators
Ask your state representative to join the Rare Disease Congressional Caucus in support of rare disease and Porphyria Awareness Week. You can find a copy of the press release on the Porphyria Awareness Week homepage. If you would like us to send it on your behalf or need help finding your representatives, please email Edrin Williams, Director of Patient Services: firstname.lastname@example.org