Rare Disease Week 2021

  • Friday, April 2, 2021

Save the date! Rare Disease Week on Capitol Hill is an annual event that connects the rare disease community with their legislators and fellow advocates. It is an opportunity to educate and spread awareness, while advocating for porphyria.

This year's Virtual Rare Disease Week on Capitol Hill 2021 will be held July 14th through July 22nd and will include the same opportunities as in-person Rare Disease Week, plus more!

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