Recordati Rare Disease Click Campaign

Thursday, July 9, 2020

We will be launching a click campaign on Friday, July 17. For every CLICK, the APF will receive a $5 donation, up to $5,000 from Recordati Rare Diseases.

This campaign will allow us to continue to spread porphyria awareness and educate our local community and healthcare professionals about Porphyria. Get ready to share with your online community. (Link coming soon!)

#PorphyriaStrongerTogether #PorphyriaAwareness #AskMeAboutPorphyria

Light Bulb Drive Update

Recently, the APF requested donations for much needed incandescent light bulbs for our photosensitive patient community in need of them.

We are happy to say that we have had an outpouring of donations. We will be sharing further details on the light bulb drive in our upcoming third quarter newsletter.

Thank you to all of you who donated bulbs - they will have a tremendous impact; helping members to have as normal a daily routine as possible.