Show Your Rare for Rare Disease Day – February 28!

Join the APF and the global rare disease community in raising awareness on Rare Disease Day, February 28, 2025! This is a powerful opportunity to make porphyria and all rare diseases more visible, helping to improve diagnosis, research, and treatment.

Download these posters and tell the world in a word or phrase what Porphyria is to YOU:

 

 

How else can you show your rare?

• Share your patient/survivor story online or email us—it helps others feel less alone and spreads awareness
• Like and share our content on social media to help educate and inform more people.
• Create a Facebook or Instagram fundraiser for the APF – Every dollar supports research, advocacy, and patient resources.
• Make a direct gift to support the APF and our mission.
• Wear stripes or zebra print – Rare diseases are often called “zebra” conditions because they are frequently overlooked.
• Post a photo on social media with the hashtag #ShowYourRare #porphyria and #RareDiseaseDay and tag @AmericanPorphyriaFoundation so we can amplify your voice!
• Light up landmarks – Many buildings worldwide will be illuminated in Rare Disease Day colors. If you see one, snap a picture and share it with us! #AmericanPorphyriaFoundation #Porphyria #LightUpforRare

Every voice matters! Let’s make porphyria and rare diseases impossible to ignore. Learn more at www.porphyriafoundation.org. ???