Special Patient Day Meeting

  • Friday, June 25, 2021

The Heme Biosynthesis and the Porphyrias 2021: Consensus Diagnoses, Variant Disorders, New & Emerging Therapies, is to be held October 15-17, 2021, at the Hyatt Regency Schaumburg, IL near the Chicago O’Hare Airport.

This 2.5-day educational symposium will feature international and national experts who will present on the latest findings on the biology, transport, and regulation of heme biosynthesis; as well as the clinical features, management, and current and emerging treatments for the acute hepatic and erythropoietic porphyrias.

Special Patient Day Meeting

Join us for a special Patient Day Meeting during the Heme Biosynthesis Symposium!

With informational sessions and networking opportunities, this in-person and virtual event is a must-attend for all patients globally.

Highlights of the patient day include:

  • Latest diagnostic & treatments options & sessions on each of the eight porphyrias
  • The importance of research
  • Pain management including the use of cannibas, psychological issues and quality of life discussions
  • "Ask the Porphyrias Experts" open discussion panel


?Register Now!