STAT ACT

The STAT Act is a bipartisan bill that was created with the input of the rare disease community aimed at improving the development of and access to therapies for the rare disease community. The STAT Act will enact targeted, impactful, and attainable policy reforms at the Food and Drug Administration (FDA) to accelerate the development of therapies across the spectrum of rare diseases and disorders and facilitate patient access to such therapies.

Contact your state representatives in Congress to ask for their support in co-sponsoring this important bill! Email edrinw@porphyriafoundation.org for more information.