Take Action - be a Rare Disease Advocate!

  • Friday, May 22, 2020

Make an impact on federal policy close to your home sharing your rare disease story.

As a rare disease advocate you are a very important part of the legislative process. You can make a difference by making your voice heard by your Senators and Representatives.


August 3 – September 7, 2020

(Registration is open from May 4 through July 3)


The local offices of your Members of Congress (Virtual meetings will take place if social distancing remains in place in August)


Rare Disease Legislative Advocates (RDLA) staff organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The meetings take place in the Member’s district office during the month of August, while Congress is in recess from August 3rd to September 7th, 2020. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars. If social distance is recommended in August, RDLA will schedule virtual meetings for advocates with their Members and/or the Member's staff.

No prior advocacy experience is necessary.

Registration for this event and all RDLA events are free for rare disease advocates.

Learn more about Rare Across America