FOR SUPPORT, CALL 1-866-APF-3635 (273-3635)
You are our Honored Guests. The APF will host a meeting in Venice, Fl for patients, family, caretakers, friends and anyone interested in PORPHYRIA. All porphyrias will be represented . Enjoy the fun of meeting other porphyria people, as well as learn from healthcare professionals and other patients who will share their journey. Everyone is invited. Contact the APF at 866 APF 3635 or general@porphyriafoundation.org for details or to RSVP.
Alnylam Pharmaceutical will host a meeting focusing on Givlaari, a treatment for the Acute Porphyrias. Patients, family, friends are invited to the Tampa, Fl meeting. Hear from a Givlaari patient and healthcare professional who will share treatment details. See the invitation and contact the APF for further information at general@porphyriafoundation.org.
