Due to the continued spread of COVID-19, the APF has had to cancel all in-person Patient Education and Support Meetings. These meeting offer patients the opportunity to meet others who share similar experiences and have the opportunity to meet a porphyria expert. Discussions often include medical explanations, information about current and emerging treatments, and an extended time for Q&A to answer specific questions.
We will now offer patients the opportunity to have this experience virtually!
Stay tuned for details for regional meetings!