Volunteers Needed!

  • Thursday, May 9, 2019

The APF will be exhibiting at the 2019 Digestive Disease Week Meeting in San Diego, CA, May 19-21. Are you local to the area and interested in volunteering at our booth? If so, please contact Edrin Williams, Director of Patient Services, for additional information at edrinw@porphyriafoundation.org or 301.347.7166.

This is an incredible opportunity to raise awareness about porphyria to those with little knowledge about this rare disease.