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The Porphyria Drug Database is a critical resource for patients with AHP or Acute Hepatic Porphyrias (AIP, VP, HCP and ADP). It plays a vital role in ensuring the safety and well-being of individuals living with this rare disease. This information is provided as a resource to healthcare providers to help reduce the risk of unnecessary suffering, hospitalizations, and medical complications for patients.
This database is based on a compilation of expert assessments of the potential of drugs to trigger attacks or worsen the symptoms of AHP, or Acute Hepatic Porphyrias (AIP, VP, HCP & ADP), based on the available medical evidence. However, this evidence is not always complete, and some medications affect individual patients differently, which may lead to some degree of uncertainty.
The information provided in the Drug Database pertains only to the risk of an attack of AHP, or Acute Hepatic Porphyrias, associated with medication. All safety issues and the appropriate use of any drug should be reviewed with a medical provider before taking medication.
The information in the database is meant for general informational purposes to healthcare professionals and is subject to change. The prescription of drugs to a patient with Acute Hepatic Porphyrias is solely a matter between a patient and their physician. While it may be of interest to patients, any and all decisions regarding the use or non-use of any medication in acute porphyria are ultimately the responsibility of the patient and their healthcare provider. APF does not provide medical advice, and the information contained herein should not be considered medical advice.
By using this website and accessing the Drug Database, you expressly accept and agree to the terms and conditions here*.
By clicking here, you will be directed to the website of a third party outside the APF. The APF has no control over the content of this website and expressly disclaims any and all liability for the information contained therein or its use.
Access AHP Drug Safety Database
If you have AHP or an Acute Hepatic Porphyria (AIP, HCP, VP, or ADP) and have experienced an adverse reaction to a medication, please report it to the APF by calling toll-free 866-APF-3635 or emailing general@porphyriafoundation.org. Please be prepared to describe the reaction, and if photographs can help describe the reaction, please email the photos to general@porphyriafoundation.org.
UK Porphyria Medicines Information Services Safe List
Porphyria Drugs Mobile Web App
*Full disclaimer, terms and conditions:
APF does not make any warranties or guarantees about the completeness, reliability, and accuracy of the information. Users acknowledge that no action should be taken based on the information contained herein, and any action or inaction taken based on the information found on this website is strictly at one’s own risk.
APF accepts no responsibility for any errors, differences of opinion, or adverse consequences arising from or relating to the use of information published on this website APF will not be liable for any losses and/or damages in connection with the use of the Drug Database and, as a condition of using or accessing the Drug Database, you hereby agree to hold the APF, its employees, consultants and agents harmless from any and all claims, damages and liability based on your use of this database and the information contained herein to the maximum extent permitted by applicable laws.
New information may be periodically added to the database, and existing data may be subject to change. APF takes no responsibility for and will not be liable for any errors or temporary unavailability due to technical issues, regardless of cause.
The American Porphyria Foundation website offers comprehensive information on the porphyrias and the latest updates and news stories, such as:
Learn about research opportunities
Read the latest news and updates
Access the Emergency Room Guidelines for Acute Porphyrias
