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EXCITING NEWS for EPP AND XLP FRIENDS
June 18, 2025
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For Healthcare Professionals
June 18, 2025
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PORPHYRIA AWARENESS WEEK 2025
May 2, 2025
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Show Your Rare for Rare Disease Day – February 28!
February 28, 2025
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Porphyria Awareness Week 2024
April 13, 2024
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APF 2024 Pet Calendar Contest
September 7, 2023
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Porphyria Awareness Week 2023
April 15, 2023
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EPP Patient Day
March 25, 2023
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Hope for the Holidays - Porphyria Contribution
November 30, 2022
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Disc Medicine Initiates AURORA, a Phase 2 Clinical Study of Bitopertin in Adults with Erythropoietic Protoporphyria (EPP)
November 9, 2022
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