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Porphyria Awareness Week 2019
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NORD Introduces This Year's Rare Disease-Fighting Super Group: The 2020 Rare Impact Award Honorees!
February 13, 2020
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Member Stories
February 13, 2020
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SHADOW JUMPERS PRESENTS FIND YOUR SHADOW 2020!
February 13, 2020
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Porphyria Awareness Week! April 18-25, 2020
February 13, 2020
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Research Opportunity - Panhematin® Prevention Study
February 7, 2020
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Member Stories
February 7, 2020
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SHADOW JUMPERS PRESENTS FIND YOUR SHADOW 2020!
February 7, 2020
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Porphyria Awareness Week! April 18-25, 2020
February 7, 2020
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Shadow Jumpers Presents Find Your Shadow 2020!
January 30, 2020
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Volunteers Needed!
January 30, 2020
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