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Porphyria Awareness Week 2023
April 15, 2023
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EPP Patient Day
March 25, 2023
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Hope for the Holidays - Porphyria Contribution
November 30, 2022
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Disc Medicine Initiates AURORA, a Phase 2 Clinical Study of Bitopertin in Adults with Erythropoietic Protoporphyria (EPP)
November 9, 2022
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Check out my new book!
October 24, 2022
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Member Stories
September 10, 2022
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Givlaari Networking Forum
May 2, 2022
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Porphyria Awareness Week
April 2, 2022
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Happy Birthday American Porphyria Foundation 40 years!
March 31, 2022
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Two of Me: Living with Porphyria
February 24, 2022
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