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Preliminary Survey Results of COVID-19 on Rare Disease Community
February 19, 2021
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New Member Stories Needed!
February 19, 2021
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Participants Needed for the Porphyria Worldwide Patient Experience Research (POWER) Study
February 19, 2021
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ASH Article Highlights the Challenges of Diagnosing and Treating Porphyria
February 12, 2021
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Research Opportunity - Panhematin® Prevention Study
February 12, 2021
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Rare Disease Day at NIH 2021 Registration is Open!
February 5, 2021
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New US Study Sites for Mitsubishi Phase 3 Clinical Trial for MT-7117
February 5, 2021
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Porphyria Awareness Week APRIL 10-17, 2021
January 29, 2021
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New Patient Education Meetings for 2021
January 29, 2021
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50% Off Coolibar Products!
January 29, 2021
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