All News

GPAC has been formalized.

The American Porphyria Foundation hosted a CEP Patient Education and Support Meeting via online webinar.

We are excited to share that Recordati Rare Diseases Canada Inc. announced...

The International Congress on Porphyrins and Porphyrias (ICPP)

The Food and Drug Administration (FDA) hosted the American Porphyria Foundation on Monday, August 26^th

Please share in a warm welcome to Iany Schneider, our new Administrative Assistant at the APF. 

Ongoing interactions continue to take place.

Do you know the benefits of Prophylactic Heme Treatment?

Last week the APF sent the McKillop Family to the “Happiest Place on Earth”

The APF will be participating in a FDA Rare Disease Listening Session