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The Food and Drug Administration (FDA) hosted the American Porphyria Foundation on Monday, August 26th
Please share in a warm welcome to Iany Schneider, our new Administrative Assistant at the APF.
Ongoing interactions continue to take place.
Last week the APF sent the McKillop Family to the “Happiest Place on Earth”
The APF will be participating in a FDA Rare Disease Listening Session
Seeking patients who receive prophylactic heme treatment and the treatment has been working for them.
Did you know that the APF will send a physician education packet to any of your doctors?
The FDA has accepted the New Drug Application for givosiran and granted it Priority Review.
