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Ongoing interactions continue to take place.
Last week the APF sent the McKillop Family to the “Happiest Place on Earth”
The APF will be participating in a FDA Rare Disease Listening Session
Seeking patients who receive prophylactic heme treatment and the treatment has been working for them.
Did you know that the APF will send a physician education packet to any of your doctors?
The FDA has accepted the New Drug Application for givosiran and granted it Priority Review.
Share your stories at upcoming events where APF will be exhibiting.
