• Tuesday, February 16, 2021

New Patient Education Meetings for 2021

Friday, February 12, 2021

In keeping with COVID safety protocols, the meetings will continue to be on Zoom for the foreseeable future.

Join us on Thursday, February 25, 2021, at 7:00 PM ET for a live Zoom Session with Karli Hedstrom, MPH, Clinical Research Coordinator at the Icahn School of Medicine at Mount Sinai. Ms. Hedstrom will discuss the importance of research participation. 

Click on the link below to register. After registering, you will receive an email confirmation with instructions to log-in. 

You can also reach Edrin Williams via email edrinw@porphyriafoundation.org to RSVP.

Click Below to Register: