Today is Day 3 of Porphyria Awareness. Today we will cover from our Experts the Porphyria Consortium on the types of acute porphyria, diagnosis, treatments available.
AIP, VP, HCP, ADP are the types of Acute. In today's enews read over Michael Aip story & Arielle Rose Dimino personal journeys. If you have not received a free patient packet, physicians kit, or ordered the Comprehensive ED Kit for Acute Porphyria I encourage you to do so. As we see in this latest Pandemic hitting the Countries with having a rare disease we need to be fully equipped when we have a rare disorder. Enjoy reading the Porphyrias Consortium article here: https://www.rarediseasesnetwork.org/cms/porphyrias/Learn-More/Disorder-Definitions
To Order an ED Kit or Acute brochures please click here to place your order: