Porphyria Awareness Week April 2-9
WE FIGHT PORPHYRIA TOGETHER!
Activities will include:
1. A pre-Awareness Week Zoom for patients on March 31, 2022 with Dr. Sanjay Hapani in Oklahoma City, OK. A ZOOM announcement will be posted on social media and the APF website .
2. A video launch of Frequently Asked Questions with Dr. Jospeh Heflin
3. Two Documentaries showing to include Two of Me and The Balancing Act
4.The member Pet Parade.
5. A Caretaker Round Table
6.A Patient Meeting at 6 Mistflower Lane, Santa Rosa Beach, FL 32459
7. An APF 40th Birthday Party
8. The Celebration of 15,000 APF members Wear Purple Friday April 8, 2022
9. Hat Day for Cutaneous Porphyrias
10. THE CLICK CAMPAIGN
11. and much, much more!!!!
IF YOU ARE MISSING MAIL TO THE APF AND IT HAS NOT BEEN RETURNED to you , PLEASE CONTACT THE APF.
VERY IMPORTANT 866 APF-3635 OR 713 857 0995