• Mar 14, 2022

Prepare for

Porphyria Awareness Week April 2-9

WE FIGHT PORPHYRIA TOGETHER!

Activities will include:

1.  A pre-Awareness Week Zoom for patients on March 31, 2022 with Dr. Sanjay Hapani in Oklahoma City, OK. A ZOOM announcement will be posted on social media and the APF website .

2. A video launch of Frequently Asked Questions with Dr. Jospeh Heflin

3. Two Documentaries showing to include Two of Me and The Balancing Act

4.The member Pet Parade.

5. A Caretaker Round Table

6.A Patient Meeting at 6 Mistflower Lane, Santa Rosa Beach, FL 32459

7. An APF 40th Birthday Party

8.    The Celebration of 15,000 APF members Wear Purple Friday April 8, 2022

9.  Hat Day for Cutaneous Porphyrias

10. THE CLICK CAMPAIGN

11.  and much, much more!!!!

IF YOU ARE MISSING MAIL TO THE APF AND IT HAS NOT BEEN RETURNED to you , PLEASE CONTACT THE APF.

VERY IMPORTANT 866 APF-3635 OR 713 857 0995

 

 

FREE

REPOSTS

See: PinpointAHP.com

 If you missed it, watch this wonderful documentary.  Please “Tell 15” others about the documentary to raise awareness of acute porphyria and help shorten the years it can take for someone to be accurately diagnosed.

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Also watch the Balancing Act with Nicole Castellano and Dr. Angelika Erwin on the same website . Nicole's inspiring story and Dr. Erwin's outstanding explanations of acute porphyria are a DON'T MISS!!

 

THE LAUNCH OF THE VIDEO

FREQUENTLY ASKED QUESTIONS WITH DR JOSEPH HEFLIN

WILL BE HELD ON APRIL 4, 2022

PORPHYRIA AWARENESS WEEK

 

 

 

 

 

 

 

 

CHECK OUT THE APF STORE FOR

HATS, T-SHIRTS , SWEAT SHIRTS, CUPS ,

PENS, kEY CHAINS AND SO MUCH MORE

SEE:

https://porphyriafoundation.org/apf-store/

 

YOU CAN ALSO ORDER BROCHURES AND EMERGENCY ROOM KITS THROUGH THE STORE.

 

 

 

 

 

 

THE APF NEWSLETTER WILL BE POSTED ON THE WEBSITE MARCH 17, 2022. DUE TO PAPER SHORTAGES, IT WILL NOT BE MAILED TIMELY . WE ARE AWAITING THE SUPPLIES DELIVERY

 

 
 
 

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