American Porphyria Foundation-
Clinicians and researchers specializing in Porphyria may be available to consult with a healthcare professional on suspected or confirmed cases of Porphyria. Please call the APF office at 301-347-7166 for information on contacting the specialist who can best answer your concerns.
The APF encourages you to let Porphyria patients know about our organization and our programs. We publish educational brochures, written by Porphyria experts for a lay audience, and a quarterly newsletter in addition to this website. We also offer members a national support network, which for some people provides the first-in-a-lifetime opportunity to speak with someone who shares their diagnosis.