• Jun 9, 2021

Attention Rare Disease Patient’s & Parents with Youth 12 & Under with Rare Disease

Continuing the Conversation: FDA and CDC Leaders Discuss the COVID-19 Pandemic, Vaccines, and Special Considerations for the Rare Disease Community

Date: June 16, 2021

Time: 2:00 - 3:00pm ET

Register Now

Join the National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association to continue the conversation about vaccines during a special webinar featuring leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control and Prevention (CDC).

This webinar will address the:

Effectiveness of the vaccines for immunocompromised individuals;

Timeline for vaccine authorization for children under the age of 12;

Future needs for booster shots or vaccine passports, and more.

Questions from members of the rare community will be collected during the registration period and addressed in the discussion.

For those unable to join on June 16, this webinar will be recorded and sent to all registrants for on-demand viewing.

This webinar is intended for patients, caregivers, advocates and the general public.


To view NORD’s January 15, 2021 webinar with FDA and CDC leaders: “COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community,” click here.


Dr. Janet Woodcock, Acting Commissioner, FDA

Dr. Peter Marks, Director, Center for Biologics Evaluation and Research, FDA

Dr. Anne Schuchat, Principal Deputy Director, CDC

Dr. Sara Oliver, Epidemiological Intelligence Service Officer, CDC

Opening Remarks

Peter L. Saltonstall, President and Chief Executive Officer, NORD


Dr. Edward Neilan, Chief Medical and Scientific Officer, NORD