Current Research Needs from the American Porphyria Foundation

Current Research Needs

Are you interested in participating in research? If so, we need you!

Below is a list of current studies and clinical trials that need participants. Click on the link below to view more information on the APF website! This will be updated as new opportunities arise.

Panhematin Prevention Study – Acute Porphyria

MT-7117 Phase 3 Clinical Trial for EPP/XLP

Harvoni Study for PCT

SunSense - Short Term Study for EPP

"Remember...Research is the Key to your Cure!"

https://porphyriafoundation.org/get-involved/current-research-needs-observational

-studies-clinical-trials-and-surveys/

 

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