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  • Apr 22, 2020

April 22, 2020    https://conta.cc/3cKfLoJ

Schedule for Today - Wednesday April 22, 2020

Focus on Hereditary Coproporphyria (HCP)

MAKE SURE YOU HEAD TO FACEBOOK AT 4:30 PST/6:30 CST/7:30 EST

#AskDrWangAboutPorphyria

Facebook Live with Porphyria Expert, Dr. Bruce Wang

Dr. Wang, UCSF, will answer your questions during a Facebook Live event TODAY - Wednesday, April 22 at 7:30 PM - EST. Please make sure that you are following the APF FB Page.

Please send us any questions that you would like answered by Dr. Wang. We will be accepting questions at: info@porphyriafoundation.org until 4:30 PM EST.

HCP Member Spotlight - Sara Lee

Read About Sara's Porphyria Story

Hereditary Coproporphyria (HCP)

Hereditary Coproporphyria (HCP) is a rare metabolic disorder characterized by deficiency of the enzyme coproporphyrinogen oxidase (CPOX).

Click Here to Read More HCP Member Stories

SEND US YOUR PHOTOS AND STORIES FOR A

SATURDAY #PorphyriaAwarenessWeek ROUND-UP

Purple shirt? Purple Hair? Purple Nails? Furry friends?

An interesting conversation?

Send your pictures and/or stories to info@porphyriafoundation.org

Shop

Hurry - supplies are going fast! Porphyria Awareness Week Merchandise for sale on the APF store.

APF STORE LINK- https://porphyriafoundation.org/apf-store/

#AskMeAboutPorphyria encourages you to educate your local community and healthcare professionals through encouraging a conversation about Porphyria and the impact it has on you. One conversation can make a difference.

Have you had a good conversation about Porphyria? Share with us at: info@porphyriafoundation.org or edrinw@porphyriafoundation.org

 

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Contact Information

Is your contact information up to date?

If not please give us a call @ 1- 866-APF-3635 or Email to info@porphyriafoundation.org

American Porphyria Foundation| 1.866.APF.3635 | porphyriafoundation.org

"Remember....Research is the Key to Your Cure!"

 


 

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