We'd like to invite you to share your experiences living with Acute Hepatic Porphyria (AHP)!


We are working with two global research firms, Just Worldwide and The Ideas Project, to understand the experiences of individuals in the United States living with Acute Hepatic Porphyria.


Specifically, we're looking for individuals who are experiencing symptoms or who are on prophylactic (preventive) treatment for AHP. You do not have to be on treatment to participate.


Your participation in this research will include taking a ~15 minute online survey. Some individuals may be asked to participate in an additional 60-minute telephone interview with a member of our research team. After your participation, you will be compensated for your time.


This research will take place in late October through early December.


For more details, please reach out to Tom Herr at Tom@just-worldwide.com

If you are interested, you can also complete a short survey at the link below to confirm a few details about yourself and determine your eligibility: