Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

  • Jan 27, 2022
  • 2 Comments

Pain. When you think of pain, do you think Acute paralyzing pain, throbbing pain, or dull.

Pain has a stigma attached to it.  Why? When patients are diagnosed with an ailment or a disease, the Dr. must know that the patient will have pain, endure pain, but yet they do nothing.  Some Doctors shock me personally, they look and stare at you and say there is nothing wrong nothing I can't help you. Some Doctors are so quick to write all your medications out and they never examine you.  In my personal case I was asked to see a neurologist to help me with my chronic and acute pain.  I paid my co-pay and there I sit waiting for over 3 hours and she never had the appointment.  Have any of these things happened to you, I hope that you share your experience.

This link you can read for your self Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6132435/

"Remember... Research is a Key to your CURE!"

 


 

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