PORPHYRIA  AWARENESS WEEK 

 

WE ARE STILL LOOKING FOR ALL INDIVIDUALS EARTHWIDE TO SHARE YOUR STORY OF PORPHYRIA,

EVEN IF UNDIAGNOSED AT THIS TIME WE ENCOURAGE YOU ALL TO PARTICIPATE.  YOUR PARTICIPATION

IN APF AWARENESS WEEK SHOWS TO THE WORLD THAT WE MAY BE RARE, BUT WE ARE NOT ALONE.

 

PLEASE SUBMIT YOUR PHOTO, YOUR STORY OF DIAGNOSIS, SHARE WHERE YOU ARE FROM.  WE WANT TO HEAR FROM ALL OF YOU.

 

TO SUBMIT YOUR PHOTO, QUESTIONS, AND STORIES PLEASE SEND TO :GENERAL@PORPHYRIAFOUNDATION.ORG, OR AMY@PORPHYRIAFOUNDATION.ORG