Spring Tips & The Porphyrias

  • Mar 14, 2021

Spring is just around the corner.  No matter the type of Porphyria you have here are some simple tips and reminders for Spring 2021 among COVID.

Keep Your Routine

There is no better time to reset and recharge than spring break, but at the end of the week it’s back to reality! Fight the re-entry blues by maintaining your routine as much as possible while you’re away. 

Pack Clothes for Each Day

It may sounds tedious, but in the end it will pay off! When packing for kiddos, pack an outfit for each day in a Ziploc bag. This avoids the stress of choosing an outfit every morning and helps separate dirty clothes from clean ones.

Take A Picture

Especially when visiting theme parks! Snap a picture of your child every morning. In the event they get lost, it’ll be easier to remember their outfit and help others identify them.

Think Inside Events

While soaking up a little sun will always hold a place in our heart, don’t rule out the less tropical locales. You could learn about US history in DC or explore the National Parks Lewis and Clark style.  

Be Prepared

Required vaccinations? Check. Documentation of absent parent for international travel? Uh.. Do your research to ensure you have all of the proper documentation before hitting the road, especially when traveling internationally or with minors. SPF, Hats gloves, long sleeves that breath, sunglasses, shoes, MASK, follow all current COVID rules where you travel.

Plan for Down Time

While we all want to make the most of our time in a destination, it’s important to leave yourself sometime to unwind. Don’t run yourself ragged and end up in need of a vacation from your vacation. nIf your with a group of people its ok to excuse yourself and stay in a safe quiet area, just let your friends know where you'll be.

 Only Pack the Essentials

You’re just there for a week; don’t spend your time lugging around your suitcase. Pack what you need, and when in doubt leave it out! If you need a little help, check out a local store, or pharmacy. Don't forget if you take any medications bring enough until you reach home in case you get delayed.

Double, triple check the forecast. We all know that Spring weather is nothing if not unpredictable. It’d be a bummer to enjoy 80 degree weather in a 50 degree wardrobe.

Learn Something!

Okay, we’re not saying there needs to be a quiz at the end of your vacay, but it never hurts to pick up a few new words in a different language, even try a new food, see the sea, animals, historical sights go shopping.

 Always Bring a Swimsuit

Whether you’re heading to the beach, hitting the slopes, or spending time in the big city, Bring. A. Swimsuit. Chances are there is a pool at the hotel or nearby, and swimming can be fantastic for downtime (and getting that never-ending energy out)!

Pack an Empty Bag

Whether you use it for souvenirs or dirty clothes, you never know when a little extra storage may come in handy. 

Be Schedule Savvy

It’s no surprise that spring break is a peak travel season.avoid less crowded places eat a bit earlier or later, and avoid spending half of your trip waiting in line. 

Make a Copy of your Itinerary

Whether it’s a parent or neighbor, give someone on the home front a copy of your itinerary or hotel accommodations in case they need to reach you.

Set your out of office, and step away from social media. Spring break is a short week, so make the most of the time with your family or friends. Hang up and hang out.  Planning is more fun when each family member feels like they have a say. Try letting everyone choose one group activity they are excited to-do. Teamwork makes the dream work! Keep a Journal Spring break memories may last forever, but they do fade. Write down the good, the bad, and the funny. You’ll be happy you did, especially when your children are older.

BE FLEXIBLE FOR THOSE WITH PORPHYRIA

Keep calm and be flexible. You never know what’s around the corner, so keep a less rigid itinerary to allow for the next unexpected meltdown.  Not only a meltdown but what if you suffer from an acute attack of Porphyria do you friends and family know what and where to go in the event of an emergency.  What about an EPP reaction Ouch! Get back into the hotel room with a cool fan, water.

Traveling as a group is always more complicated than traveling in ones and twos. Get to the airport extra early and leave a little cushion in between activities.

Those are my tips for those who suffer from Porphyria Let me hear what you do and pass it along to Amy@porphyriafoundation.org

 

 


 

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