• Wednesday, April 14, 2021

Schedule for Today - Wednesday April 14

Facebook Live with Dr. Bruce Wang 

Focus on Acute Intermittent Porphyria (AIP) 

TODAY!

MAKE SURE YOU HEAD TO FACEBOOK AT 6:00 EST/3:00 PST/4:00 CST

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#AskDrWangAboutPorphyria

 

Facebook Live with Porphyria Expert, Dr. Bruce Wang

Dr. Wang, UCSF, San will answer your questions during a Facebook Live event TODAY - Wednesday, April 14 at 6:00 PM - EST. Please make sure that you are following the APF FB Page.

 

Please send us any questions that you would like answered by Dr. Wang. We will be accepting questions at: info@porphyriafoundation.org until 4:30 PM EST.

 

Maira Martínez Eng Vid

AIP Member Spotlight - Maira Martinez

Click on the video link to watch Maira's story!

Acute Intermittent Porphyria (AIP) 

Acute Intermittent Porphyria (AIP) is characterized by deficiency of the enzyme hydroxymethylbilane synthase (HMBS), also known as porphobilinogen deaminase (PBGD).

 

?Click Here to Read More AIP Member Stories

Coming tomorrow...

Focus on Variegate Porphyria (VP)

Coming Soon....

Contact your Federal Legislator Day!

Porphyria Click Campaign, sponsored by Recordati Rare Diseases

SEND US YOUR PHOTOS AND STORIES FOR A

SATURDAY #PorphyriaAwarenessWeek ROUND-UP

 

Purple shirt? Purple Hair? Purple Nails? Furry friends?

An interesting conversation?

 

Send your pictures and/or stories to info@porphyriafoundation.org

Shop 

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Hurry - supplies are going fast! Porphyria Awareness Week Merchandise for sale on the APF store.  

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APF STORE LINK

#LETSTALKPORPHYRIA encourages you to educate your local community and healthcare professionals through encouraging a conversation about Porphyria and the impact it has on you. One conversation can make a difference.

 

Have you had a good conversation about Porphyria? Share with us at: info@porphyriafoundation.org or edrinw@porphyriafoundation.org

 

 

Please Click Here to Access the APF Webpage for Awareness Week Logos and Materials

 

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Contact Information

 

Is your contact information up to date?

If not please give us a call @

866-APF-3635 or Email to info@porphyriafoundation.org

 

American Porphyria Foundation| 1.866.APF.3635 | porphyriafoundation.org

"Remember....Research is the Key to Your Cure!"

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