What types of things are helpful or recommended to maintain wellness (diet, medications, supplements, vitamins, etc.)

  • Nov 1, 2021

What types of things are helpful or recommended to maintain wellness (diet, medications, supplements, vitamins, etc.)

For patients with an acute porphyria it is important to have a healthy, well balanced diet and avoid fasting or dieting. Excessive carbohydrates are not recommended routinely. There are no specific recommendations for vitamins or supplements

Patients with cutaneous porphyrias can have low vitamin D levels as they avoid sunlight. We recommend a daily vitamin D supplement in these patients to maintain bone health

 


 

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