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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentess focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these ae normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

NORD Introduces This Year's Rare Disease-Fighting Super Group: The 2020 Rare Impact Award Honorees!

Thursday, February 13, 2020

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Member Stories

Thursday, February 13, 2020

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SHADOW JUMPERS PRESENTS FIND YOUR SHADOW 2020!

Thursday, February 13, 2020

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Upcoming Foundation Events

February 24, 2020 - February 29, 2020

Rare Disease Week on Capitol Hill

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February 24, 2020

Rare Disease Day Public Meeting

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February 26, 2020

Legislative Conference

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