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American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

FDA & CDC Leaders Discuss the COVID-19 Pandemic

Friday, June 11, 2021

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Heme Biosynthesis and the Porphyrias 2021: Consensus Diagnoses, Variant Disorders, New & Emerging Therapies

Friday, May 28, 2021

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APF 2021 President's Awards

Friday, May 28, 2021

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Upcoming Foundation Events

July 5, 2021

APF Office Closed

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July 14, 2021 - July 22, 2021

Virtual Rare Disease Week on Capitol Hill

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September 6, 2021

APF Office Closed

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