All News

Patient Education and Support Meeting- NYC

Patient Education and Support Meeting- NYC

July 11, 2019

Last night, July 10th, the APF hosted a Patient Education and Support Meeting in New York City at Mt. Sinai

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Panhematin Problems???

Panhematin Problems???

July 11, 2019

Have you had problems or difficulties accessing Panhematin in a hospital setting

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Happy 4th of July

Happy 4th of July

July 3, 2019

The APF will be closed in observation of Independence Day on July 4th, 2019. We will resume normal office hours on July 5th, 2019 at 9am.

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Medical Moment: Publications by porphyria experts

Medical Moment: Publications by porphyria experts

July 3, 2019

Over the years, the experts of the Porphyrias Consortium have developed an extensive list of publications.

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EPP at Camp Sundown

EPP at Camp Sundown

June 27, 2019

Camp Sundown has provided children and families with the opportunity to take part in a unique camp experience.

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Patient Education and Support Meetings

Patient Education and Support Meetings

June 27, 2019

Meetings scheduled for New York City (July 10) and Winston-Salem, NC (August 6).

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Call To Action

Call To Action

June 20, 2019

We encourage you to contact your LEGISLATORS and MEDIA! Share the story of EPP and Scenesse.

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Ask Us Anything

Ask Us Anything

June 20, 2019

Expert physicians on our Scientific Advisory Board can answer your porphyria questions.

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Member Stories

Member Stories

June 14, 2019

The American Porphyria Foundation wants to invite you to share your story with the porphyria community!

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Smile, Shop, and Support

Smile, Shop, and Support

June 14, 2019

Did you know that you can support to the APF by simply shopping on Amazon?

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