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Patient Education and Support Meeting- Winston Salem, NC

Patient Education and Support Meeting- Winston Salem, NC

August 8, 2019

Thank you to our team at Wake Forest Baptist Health!

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Harvoni Study - PCT

Harvoni Study - PCT

August 2, 2019

Do you have PCT? Are you interested in participating in research? Do you have Hepatitis C?

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APF YouTube Channel

APF YouTube Channel

August 2, 2019

Check out APF's official YouTube channel!

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Porphyria Crossword

Porphyria Crossword

August 2, 2019

Test your porphyria knowledge with this crossword puzzle!

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"Let's Talk About Pain"

July 26, 2019

What do all the porphyrias have in common? PAIN.

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Rare Artist Contest

Rare Artist Contest

July 26, 2019

Art is a powerful and therapeutic way to express the challenges and triumphs that come with living with a rare disease.

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Diagnostic Delay

Diagnostic Delay

July 17, 2019

Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience

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APF Member Featured on Local News

APF Member Featured on Local News

July 17, 2019

Terri Witter was featured on a local news segment

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Medical Moment: Your medical information, your laboratory results, and your privacy!

Medical Moment: Your medical information, your laboratory results, and your privacy!

July 17, 2019

We aim to protect the health and well-being of all patients and members.

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Rare Disease Sufferers Fighting Both Their Condition and Federal Bureaucracy

Rare Disease Sufferers Fighting Both Their Condition and Federal Bureaucracy

July 11, 2019

This critical OpEd was published today about access to Panhematin.

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