All News

What do all the porphyrias have in common? PAIN.

Share your stories at upcoming events where APF will be exhibiting.

Thank you to our team at Wake Forest Baptist Health!

Do you have PCT? Are you interested in participating in research? Do you have Hepatitis C?

Check out APF's official YouTube channel!

Test your porphyria knowledge with this crossword puzzle!

What do all the porphyrias have in common? PAIN.

Art is a powerful and therapeutic way to express the challenges and triumphs that come with living with a rare disease.

Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience

Terri Witter was featured on a local news segment