FOR SUPPORT, CALL 1-866-APF-3635 (273-3635)
Art is a powerful and therapeutic way to express the challenges and triumphs that come with living with a rare disease.
Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience
We aim to protect the health and well-being of all patients and members.
This critical OpEd was published today about access to Panhematin.
Last night, July 10th, the APF hosted a Patient Education and Support Meeting in New York City at Mt. Sinai
Have you had problems or difficulties accessing Panhematin in a hospital setting
The APF will be closed in observation of Independence Day on July 4th, 2019. We will resume normal office hours on July 5th, 2019 at 9am.
Over the years, the experts of the Porphyrias Consortium have developed an extensive list of publications.
