Porphyria Television and Other Media
The Balancing Act, Behind the Mystery: Acute Hepatic Porphyria on Lifetime TV with Nicole Castellano & Dr. Angelika Erwin
Porphyria Awareness Week 2023 News Story with Nicole Castellano on Suncoast News Network in Sarasota, spreading porphyria awareness
Inspiring Video for Porphyria Awareness Week 2023 by Andrew McManamon.
VIDEO
Books and Papers
“On Porphyria and the Aetiology of Werewolves” by L. Illis', 1963, paper published in Proceedings of the Royal Society of Medicine January 1964
The Porphyrias by Geoffrey Dean, 1971
Vampires by Nancy Garden, 1973"Porphyria, Vampires, and Werewolves: The Aetiology of European Metamorphosis Legends", paper by David Dolphin for the American Association for the Advancement of Science, 1985
Porphyrins and Porphyria by Y. Nordman, 1986American Vampires: Fans, Victims, Practitioners by Norine Dresser, 1989Porphyria by Tammy Evans, 1997
Purple Secret: Genes, 'Madness' and the Royal Houses of Europe by John C. G. Rohl , 1999Porphyria, A Lyon’s Share of Trouble by Desiree Lyon Howe, 2004Royal Maladies: Inherited diseases in the royal houses of Europe by Alan Rushton, 2008Ultimate Comics Avengers 3 #1, comic by Mark Millar, October 2010"Rare genetic disorder doesn't slow down boys," two brothers in a small Texas town deal with Erythropoietic Protoporphyria (EPP) from the Vernon Daily Record April 9, 2010. (1, 2, 3)
Digital Publications
Magazines and Blogs
Vanity Fair
A Brief History of Royals (Not) Going Public With Their Health Issues, April 9 2014
Pain News Network
Parade Magazine
Desiree Lyon Howe Story
Porphyria, Rare Disease Feature
National Geographic
New York Time Magazine & Blog
Movies
The King’s Speech (2010)
The Madness of King George (1994) & (2005) - film based on the 1991 Alan Bennett play “The Madness of George III”
Porphyria (2010)
Surya Vs Surya
News Reports
ABC.com
ABC News Specials
Medical Mysteries Series, Episode 2
Interview with Desiree Lyon
"The Mystery Illness" of Congenital Erythropoietic Protoporphyria (CEP) on Dr. Dean Edell's Medical Journal, ABC-TV 1986. (on genebennett.net )
ABC Nightline
ABC Prime Time
CEP Segment - Kasey Knauf
Royal Mystery Unraveled, August 15, 2012
Anderson Cooper 360
BBC news
CNN
CNN iReport
Dr. Drew
Mystery Illness - December 2012
Dr. Oz
EPP Patient - Craig Leppert
Fox News
Interview with Desiree Lyon
Vampires, A Medical Myth, November 2009
King George, Madness or Arsenic, July 2005
EPP with Dr. Herbert Bonkovsky July, 2015
Good Morning America
NBC Evening News
NBC Evening News, Thur. May 31 2005
Dr. Bruce Spielgaman WBZ, August 2005
Sunlight Allergy July, 2015
NBCnews.com
Sanjay Gupta
USA Today
Television Shows
Call the Midwife
Castle
Vampire Weekend: Season 2, Episode 6
Chicago Med
Inheritance: Season 1, April 16, 2016
CSI Las Vegas
Justice Served: Season 1, Episode 21
Blood Moon: Season 11, Episode 3
Dateline NBC
Diagnose Me
Ballerina Interrupted Season 1, Episode 4, May 8, 2015
Doc Martin
Uneasy Lies the Head: Season 4, Episode 2
Father Brown
The Dead of Night: Season 11, Episode 9
Gray’s Anatomy
Time Warp: Season 6, Episode 15
Harrow
They Condemn What They Do Not understand: Season 3 episode 2
House
The Socratic Method: Season 1, Episode 6
Honeymoon: Season 1, Episode 22
Fools for Love: Season 3, Episode 5 (mentions porphyria)
Finding Judas: Season 3, Episode 9
Don’t Ever Change: Season 4, Episode 12 (mentions porphyria)
Guardian Angels: Season 4, Episode 4 (mentions porphyria)
Whatever it Takes: Season 4, Episode 6 (mentions porphyria)
The Itch: Season 5, Episode 7
Emancipation: Season 5, Episode 8 (mentions porphyria)
Let Them Eat Cake: Season 5, Episode 10
Carrot or Stick: Season 7, Episode 10
You Must Remember This: Season 7, Episode 12
Bombshells: Season 7, Episode 15
Charity Case: Season 8, Episode 3
Post Mortem: Season 8, Episode 20
Learning Channel
Porphyria, Another Myth in the Making
LIFETIME Network
Midsomer Murders
Masterclass: Season 13, Episode 5
Montel Williams
Porphyria with Lauren Warren
Rare Diseases with the Leppert Family
Mystery Diagnosis
The Sickest Patient in the Hospital and Terrifying Tremors: Season 5
The Boy Who Kept Swelling: Season 6 Episode 6
Mystery ER
Seeping Through the Cracks/Purple Haze: Season 1, Episode 3
Medical Mysteries
George III - Mad or Misunderstood, BBC, July 14, 2012
Saving Hope:
The Great Randall: Season 1, Episode 6
Secret History
Purple Secret in Search of Royal Madness: Season 6, Episode 6
Scrubs
My Ocardial Infarction: Season 4, Episode 13
Kelso’s Last Stand: Season7, Episode 9
My Dumb Luck: Season 9, Episode 7
Outta here like Vladimir: Season 8, Episode 4
Telemundo
The Night Shift
Parenthood: Season 2 Episode 9
The Resident
The Flea: Season 3, Episode 14
The Rookie: Feds
Out for Blood: Season 1, Episode 12
Travel Channel
X Files
“3”: Season 2, Episode 7
Bad Blood: Season 5, Episode 12
Over 100 local television stations have produced stories on individual patients. There have also been a large number of articles on patients in local newspapers.
