We have been very blessed in having Porphyria featured in many media outlets, T.V. programs, and other misc. video outlets.
Below you will find the most recent video presentation for the Acute Porphyrias (AIP, HCP, VP), and the most recent video for the Cutaneous Porphyrias (EPP, CEP, PCT). Below you will also find our Porphyria Educational video Porphyria Live featuring Porphyria Experts and Porphyria patients.
To view the Video library of videos click on Acute Porphyria Videos or Cutaneous Porphyria Videos.
Members Stories videos can be found in the Members Stories section. Member Stories
Acute Porphyria Videos for AIP, HCP, and VP
FDA Patient Focused Drug Development Meeting ~ Acute Porphyrias
Cutaneous Porphyria Videos for EPP, CEP, PCT
NBC Dateline: Out of the Shadows ~ EPP
Dateline "Out of the Shadows" from Tommy Nguyen on Vimeo.
Porphyria Live Video. A great Porphyria educational video featuring Porphyria Experts and Members