Porphyria Videos

We have been very blessed in having Porphyria featured in many media outlets, T.V. programs, and other misc. video outlets.

Below you will find the most recent video presentation for the Acute Porphyrias (AIP, HCP, VP), and the most recent video for the Cutaneous Porphyrias (EPP, CEP, PCT). Below you will also find our Porphyria Educational video Porphyria Live featuring Porphyria Experts and Porphyria patients.

To view the Video library of videos click on Acute Porphyria Videos or Cutaneous Porphyria Videos.

Members Stories videos can be found in the Members Stories section. Member Stories


Acute Porphyria Videos for AIP, HCP, and VP

FDA Patient Focused Drug Development Meeting ~ Acute Porphyrias


Cutaneous Porphyria Videos for EPP, CEP, PCT

NBC Dateline: Out of the Shadows ~ EPP

Dateline "Out of the Shadows" from Tommy Nguyen on Vimeo.


Porphyria Live Video. A great Porphyria educational video featuring Porphyria Experts and Members