We have been very blessed in having Porphyria featured in many media outlets, T.V. programs, and other misc. video outlets.
Below you will find the most recent video presentation for the Acute Porphyrias (AIP, HCP, VP), and the most recent video for the Cutaneous Porphyrias (EPP, CEP, PCT). Below you will also find our Porphyria Educational video Porphyria Live featuring Porphyria Experts and Porphyria patients.
Members Stories videos can be found in the Members Stories section. Member Stories
FDA Patient Focused Drug Development Meeting ~ Acute Porphyrias