Inspiring Video for Porphyria Awareness Week 2023 by Andrew McManamon.
The Balancing Act, Behind the Mystery: Acute Hepatic Porphyria on Lifetime TV with Nicole Castellano & Dr. Angelika Erwin
Porphyria Awareness Week 2023 News Story with Nicole Castellano on Suncoast News Network in Sarasota, spreading porphyria awareness
Books and Papers
“On Porphyria and the Aetiology of Werewolves” by L. Illis', 1963, paper published in Proceedings of the Royal Society of Medicine January 1964
The Porphyrias by Geoffrey Dean, 1971
Vampires by Nancy Garden, 1973
"Porphyria, Vampires, and Werewolves: The Aetiology of European Metamorphosis Legends", paper by David Dolphin for the American Association for the Advancement of Science, 1985
Porphyrins and Porphyria by Y. Nordman, 1986
American Vampires: Fans, Victims, Practitioners by Norine Dresser, 1989
Porphyria by Tammy Evans, 1997
Purple Secret: Genes, 'Madness' and the Royal Houses of Europe by John C. G. Rohl, 1999
Porphyria, A Lyon’s Share of Trouble by Desiree Lyon Howe, 2004
Royal Maladies: Inherited diseases in the royal houses of Europe by Alan Rushton, 2008
Ultimate Comics Avengers 3 #1, comic by Mark Millar, October 2010
"Rare genetic disorder doesn't slow down boys," two brothers in a small Texas town deal with Erythropoietic Protoporphyria (EPP) from the Vernon Daily Record April 9, 2010. (1, 2, 3)
Over 100 local television stations have produced stories on individual patients. There have also been a large number of articles on patients in local newspapers.
