Cutaneous Porphyria Videos for EPP, CEP, PCT

Life with Erythropoietic Protoporphyria

Two patients describe their lives with epp. english subtitles!!!!!!


Porphyria Awareness Week 2018 ~ Shadow Jumpers

Meet Jenna! Jenna lives with Erythropoietic Protoporphyria (EPP).


Porphyria - Katy's Choice, CEP

Dougie Spence ~ National Porphyria Awareness Week #1


Congenital light disease EPP - treatment now!

Our European friends have created a small video to raise awareness about EPP and Scenesse.



Rare genetic disorder forces woman to stay inside

Elyse Adams of Richmond has a condition called EPP