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Porphyria Awareness Week 2021
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Countdown to Porphyria Awareness Week!
April 2, 2021
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Rare Disease Week 2021
April 2, 2021
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Rare Disease Congressional Caucus
April 2, 2021
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Patient Zoom Forum
April 2, 2021
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Find Your Shadow 2021 is Here!
April 2, 2021
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2021 EPNET Webinar Series on Porphyria
March 19, 2021
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March 19, 2021
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Attention Shadow Jumpers
March 19, 2021
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New Member Stories Needed!
March 19, 2021
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New Patient Education Meetings for 2021
March 12, 2021
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